MY MISSION IS TO EMPOWER PATIENTS TO BETTER ENGAGE WITH CLINICIANS, CLINICIANS TO BETTER COMMUNICATE WITH PATIENTS, AND ACADEMICS TO BETTER TRANSLATE RESEARCH FINDINGS.
committed to patient engagement
Much of my work has examined the health experiences and decisions of men and women at risk for hereditary cancer. For example, in collaboration with Facing Our Risk of Cancer Empowered (FORCE), my most recent project seeks to provide credible, evidence-based information and guidelines as well as links to clinical trials and supportive services to young women with breast cancer, patients with metastatic breast cancer, their caregivers, community health workers, and clinicians. As a BRCA2-positive patient, I am also committed to patient engagement throughout the research process and translating my research into practice. To this end, I participated in the CDC’s “Bring Your Brave” social media campaign designed to educate and inspire young women regarding breast cancer risk and served as a social media ambassador for the Society of the National Genetic Counselors. Through multiple collaborations, I have been funded by the National Cancer Institute, the Centers for Disease Control and Prevention, and the American Cancer Society and received awards from the National Communication Association and the International Communication Association.